Monday, 14 May 2012
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Another Monday. Man this month is going so slow. Of course the fact that we've been broke for the past two weeks may have something to do with it. Went a little overboard on our visit to Oklahoma on the 5th and payday isn't for another 2 days. Had to scramble and get a payday loan to cover the HOA fees that bounced. Only wanted $100 because that was the minimum and we were only $13 short, but they deposited $200. Good thing they did I guess... We bought some groceries and the rest went to cover the boy's doctor visit last week. We have about 5 or 6 prescriptions that need to be picked up. Those will have to wait til payday. And then we'll have to cover the payday loan and a check we wrote to daughter to reimburse her for our hotel stay. Thank God she gets a discount.
So it looks like we'll be broke for the rest of the month as well. We have to go back to Oklahoma on the 22nd. Fortunately someone else is footing the bill for flights, food and accomodations for that trip. We'll need a little money for odds and ends along the way but we won't be entertaining this time, so hopefully it'll be a little cheaper.
We'll soon find out how hubby's income will be adjusted as the new company takes over. Our insurance company will change, which unfortunately means we will likely have to start over on meeting our deductibles... That SUCKS! Cuz we're already in collections for this years deductibles as it is. But we probably won't have to continue paying back the profit sharing loan. I assume we will be taxed on the amount we still owe, but the rest will roll over to a 401K. I'm hoping we can take out a little extra to get caught up on some bills first.
I am excited about the possibility of getting dental and vision coverage. We've never had that before. I have about 10 cavities that need to be filled and I need at least one more crown. And I'm WAY overdue for an eye exam. The boy needs to see a dentist and he desperately needs braces or something to straighten his teeth out a little. There's just no room in his mouth for all those teeth and they're terribly overlapping, especially the lower front teeth. Hubby gets semi-regular eye exams but he hasn't seen a dentist in close to 20 years.
So that's enough whining. Gotta remember and be grateful for the good stuff. School is still going great for the boy. I met them at the bowling alley last week and had lunch with them at Cici's again. Had to bring a GFCF pizza for the boy, but I enjoyed sitting and chatting with the teacher and pigging out on the buffet.
Had the boy make his teacher a bracelet at an Autism store beading event over the weekend. I was hoping to have him make 2 but he barely had the patience to sit and make one. I could've kept it for myself but I rarely wear jewelry and I thought the teacher would appreciate the gesture. I wasn't terribly impressed with the selection of beads but I was grateful they weren't all the super tiny ones. The boy has limited vision and fine motor skills but he did really well with the larger ones. The bracelet turned out really cute with a pattern of light and dark wooden beads, we topped it off with a puzzle piece charm that said "Made with Love."
Hubby made me a cheese omelet for breakfast and I had him buy me a watermelon for Mother's Day. I spent the day at home in my pajamas, tried to cut my finger off trimming the fat off a chuck roast and then finished off the evening with the "Survivor" finale. All in all, not a bad day...
Hubby got the boy up and made breakfast for him while I took a quick shower this morning. Then he helped me bandage my finger. Got the boy out to the bus stop in record time... And about 2 minutes before the bus generally comes, I realized I hadn't given the boy his medicine (particularly his risperdal) this morning. I hope he isn't too disruptive. They're supposed to go swimming today and he's generally noisy at the pool anyway. Maybe they won't notice the difference. Ha, fat chance! I'd go give it to him at school but the car is out of gas.
I'm so ready to get this month over with!
Thursday, 26 April 2012
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Today I just feel like grousing... I'm still loving the new school program but I wish the boy would be a little more cooperative. He obsesses over elevators anywhere they go, has to find it and has to ride it, no matter what the cost. The teacher has been trying to use it as a reward for work done or tasks completed, ie. "Find a book to read first (at the library), then ride the elevator." "Swim first, then ride the elevator..." He's begun trying to run off and screams long and loud when they catch up with him.
The noise issue has been a problem so I began sending his Fisher-Price camera that records video to keep him occupied during downtime. Now he's begun making recordings of himself screaming. Granted, I get to see how they respond to his misbehavior once I view the videos. So far it seems very appropriate, but I'm pretty sure they know they're being recorded. It's a nice little glimpse into his everyday activities at times too because he will turn it on, set it down and even if I can't see what's going on, I can hear conversations in the background. It's actually sort of refreshing that they even encourage him to bring the camera to school. It just shows me they don't feel they have anything to hide.
I still love the condo. I really don't have much to complain about in regards to noisy neighbors and barking dogs. But I do at times wish we had found something with an attached garage and/or street access so I don't have to get dressed and walk the boy so far to the bus stop. When we lived in the house in Jenks he had begun walking out to board the bus all by himself. I still had to meet him at the curb to get him off the bus but that was more of a safety issue, to let them know that I was home, and so that they didn't just drop him off and keep going. Someday I hope to foster some independence and let him walk to the bus stop on his own. Of course I would still watch from the balcony, it's just at this time, I'm not sure he wouldn't be distracted and try to climb in someone's car or get into trouble somehow.
My how things are different. I remember when my daughter was 13 and the boy was only about 4 years old, I would allow her to babysit him for a few hours while I ran errands in the afternoon. The boy is 13 now and I don't even feel safe letting him walk to the bus stop by himself. I certainly would never leave him home alone for any period of time. I worry he'll get into trouble just in the time it takes me to bring groceries in from the car. I know I'm a little overprotective, I always have been. But he's going to be a man soon and I need to learn to quit treating him like a child. It's just so hard when he still acts like a toddler in so many ways.
Monday, 23 April 2012
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Got our tax return this weekend and I was all excited to sign up to become a distributor for Protandim. Called my representative to have her walk me through the process. About halfway though I was shocked to find out the financial obligation was a bit more than I had anticipated. I've been to 4 meetings and they alway talk about the $630 to sign up, but that you get about $500 of that in product for your kit, your choice of either so many full size bottles of Protandim, so many bottle of True Science lotion or a combination of the two with a bunch of sample size packets of each. They made it sound like I could get a years worth of product for myself and then I would only be out the other $100 bucks or so if I never sold any product or had anyone sign up under me. But by buying the kit, I would qualify for commissions and residual income from other people who signed up underneath me or from people who bought the product. No one ever said anything about the monthly autoship that I would have to maintain and the only way to reduce my out of pocket expense is to get enough buyers to offset the cost.... I can't afford to take that risk.
I shoulda known. If it sounds too good to be true, it usually is.
Hubby and I are somewhat socially akward, and the boy sometimes makes it difficult for us to get out and meet new people, much less hold a long enough conversation to network and sell the product to anyone. I like the idea of the product and I will continue to use it, but besides the mole issue, I don't have any concrete evidence that it's doing anything for us. The boy and I have been on it for just over 30 days. It supposedly takes 90-120 days to experience full results. We've both had some bloodwork drawn (for different reasons) and as soon as we get the results of those tests and see that it might have done any good, I may reconsider. I've heard several of other people's testimonies but until I have an inspiring story of my own to share, I won't be signing up to sell anything right now.
So I'm sure my representative is a little disappointed with me. She's new to the business herself and would obviously benefit from signing some people up. But I'm going to increase my order today since I won't be getting a kit anytime soon.
If you are still interested in trying the product for yourself, and I would still recommend that you do, I can put you in contact with the person I order it from. She has become a dear friend. Her daughter is severely affected by cerebral palsy, is nonverbal, uses a wheelchair and has a therapy dog. Her daughter and the boy attended a Middle/ High School dance for students with special needs at a local church this weekend. They had a blast! And my friend was able to join my hubby and me for a nice adults only dinner at a Mexican restaurant nearby. It was nice to sit and eat and not have the kids to deal with for a couple of hours. However we both had our phones close by with volumes set to high... Just in case. Lol!
Wednesday, 18 April 2012
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Rough night... I don't think I got much sleep at all. Had painful gas and tossed and turned all night. I left the window open in the living room to draw in some fresh air. I think it must've aggravated hubby's allergies cuz everytime he would roll on his back, he would snore like a freight train. The cat sat at the foot of the bed licking himself and chewing on his nails all night. Finally had to toss the covers over him to get him to stop. I got up to relieve myself thinking it must be around 5 am. The birds had been chirping outside my window for quite awhile already... It was only 3 o'clock. I kept hearing something beeping periodically through the night. In my foggy consciousness, I convinced myself it was the catering truck that has a back up alert in the parking lot. I heard it again around 4 am and realized it was in the living room. Hubby and I have new phones. Turns out it was an alert on his phone letting him know it had finished charging. How annoying! Hubby went ahead and got the boy up to go pee but it was too late. He was already soaked. Daddy cleaned him up, stripped the sheets and put him back to bed. Then he came back to bed for about 10 minutes before the alarm went off.
Daddy took a shower and then put a waffle in the toaster for the boy. I rolled out of bed and started mixing his supplements. Got everyone off to work and school and now I'm debating going back to bed.
Daughter's graduation present is out for delivery today. I think she will be pleased. It's red, starts with a "C" and ends with an "amera." We were gonna get her a dresser, possibly a bedroom suite from IKEA. But then I found out she and the boyfriend were moving to Alabama for the summer. Boyfriend's Aunt got him an internship at an attorney's office and may have an opportunity with a forensic psychologist for my daughter. She'll be there throughout May and June, then plans to return to Oklahoma for diabetes camp. She will spend a couple weeks with us in July and then return back to Oklahoma for the younger group/ diabetes camp before she starts grad school in August. I'm so proud of her. She's already been accepted to OSU grad school, signed up for classes and got her funding approved though OKDRS.
She lost a friend she's known from diabetes camp since she was a little girl. His blood sugar got low over the weekend. I assume he went into diabetic coma or seizures, but he passed away. He had to have been around daughter's age, no more than 22. He was just as motivated as my daughter, had his whole life ahead of him, engaged to be married in 2 months. Such a tragedy. And so frightening to think it could happen to my daughter like that... I've always known and I always have this fear in the back of my mind, but she knows as well as I that you can't live your life in fear like that. She could just as easily be hit and killed by a drunk driver. I've only had to call the cops once to check in on her a couple years ago. She had been working extra shifts and going to school... I'd been trying to call and text her all day and never got a response. She lived alone and all I could imagine was her lifeless body on the floor somewhere... Turns out she had just been exhausted and slept for about 24 hours straight. She'll never let me live that one down. Lol!
Should get our tax return this week or next. Still planning on signing on to become a distributor for Protandim. I'm attending another meeting at the Hyatt this evening. I've been to 3 already and I learn something new and interesting everytime.
Wednesday, 11 April 2012
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It's hard to believe we've already been in the new condo for a month. It's going pretty great. Our first electric bill is only $19. I'm pleasantly surprised because it's a huge open floorplan with a loft and 20 foot ceilings. Our bill at the other apartment, even though we weren't there and the only things plugged in are the microwave, oven, W/D and refridgerator, was still $45. It's probably about half the square footage and only 9 foot ceilings. There is definately something wrong with this picture.
Our unit faces the parking lot so of course you have the usual cars doors slamming, engines revving and people chatting. It's not bad if you keep the windows closed. One Friday or Saturday night though, a group of drunk people came home from the bar around 2 am and decided to jump in the hot tub. The rules posted clearly state the hours are from 9am-9pm but I guess it's hard to enforce with an HOA. I was wishing I had a BB gun. Drunk guys and girls squealing directly across from my unit at 2 AM is not a pleasant experience. But I shut the windows, turned on the AC and managed to fall back to sleep. Hopefully that won't happen very often.
So far, I've seen a few people walking their dogs but I rarely hear them. And I've only seen 3 other kids at the regular bus stop in the mornings. They look to be high school age, so I assume the elementary and/or middle school bus come at a different time. The boy and I wait in the fitness center for the special ed bus. One of these days I might actually become inspired to use the equipment. I nearly did yesterday afternoon as I was waiting for the bus to drop off. But there was a young guy in there, topless, lifting weights and I became intimidated. I took my new cell phone and waited at a table outside near the pool instead.
The boy still seems to be enjoying the new school program. He's doing much better with his tasks this week volunteering at church and Goodwill. Teacher complained about him being unusually noisy on Monday and asked if we'd done anything to reduce those behaviors at other schools. I apologized and said "no." I didn't really have any suggestions for her other than constant reminders to be quiet. The next day she took a baseline to document the outbursts. It was 5 times in 15 minutes. She says she has some ideas for reducing the noisy outbursts. I certanly hope it works. I really appreciate her continuing to write detailed accounts of his day and how he's actually engaging in activities. I really feel like she's trying to make a difference and that it's not just glorified babysitting.
On Monday, as the boy and I were walking home from the bus, I asked him my usual question, "How was school today?" Normally I just get a blank look or he may echo what I say. Usually, I prompt some sort of response, but Monday he answered spontaneously, "Swimming pool!" He had indeed gone swimming that day and I was absolutely ecstatic for any sort of accurate, unprompted verbal response...
The boy and I have been trying a supplement called "Protandim" for about three weeks now. It's an antioxidant blend that's supposed to reduce the free radicals in your body that lead to oxidative stress by 40 percent. I won't go into detail here but here's a link if anyone is interested in more information. http://www.doesprotandimwork.com/tag/protandim-reviews
The boy has been taking massive doses of Vitamin A, C, and E for the past few years and his oxidative stress has still been through the roof. He also takes an oral glutathione supplement which is kind of pointless because it's mostly digested and excreted. Although some may make it's way into the circulatory system, it doesn't get into the cell that way. Protandim produces glutathione naturally and supposedly increases glutathione levels by 300 %. We will have more bloodwork drawn in a few weeks and I'm curious to see what sort of difference it's making for him if any.
You can go here and watch the Primetime Live Investigative Report with John Quinones. http://www.primetime2005.com/
It's really pretty interesting stuff. I've been attending informational meetings and I'm considering becoming a distributor. If you know me, you know how much I hate network marketing schemes. But for my understanding of the product and how it's supposed to work, as well as some of the great testimonials I've heard, I'm actually tempted. For the length of time that I've been on it, I've been sleeping better, my libido is improved, and I've had 3 small red moles on my arms and abdomen, dry up, scab over and fall off. I will have my thyroid levels tested next week and I'm curious to see if it's made any difference there either.
It works differently for different people and they state clearly that they can't claim to prevent, treat or cure any diseases, but it has several peer reveiwed clinical studies as well as 4 patents. You can go to PubMed.org and type in Protandim for those reviews or you can go here http://bigbluecalendar.mhsoftware.com/ to read them as well.
And @to_be_creative, it has excellent anti-inflammatory features, I wonder if it would help with your fibromyalgia pain?
If anyone is interested, I'm seriously considering signing up to become a distributor this week. You would really be helping me out if you ordered through me. And if you try it and decide you want to jump on the bandwagon too, I can certainly find you an informational meeting to attend. It's not well-known in Oklahoma yet as far as I can tell so you'd definately be in a prime position. Again, you'd be doing me a solid if you signed up under me. As you can tell, I'm REALLY excited about the product. They also have an anti-aging skin lotion that smell wonderful and does a great job. I've only tried a few samples but I will definately be getting some!
Thursday, 05 April 2012
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New school is going great! Teacher sends me nice long detailed notes on what they're doing and how things are going. I can't express how much I appreciate that level of communication.
Monday they went shopping and to the library. Tuesday they set up tables and chairs at a church. Wednesday they went swimming. Today they're volunteering at Goodwill and tomorrow they will go bowling and have lunch at Chick-Fil-A. Teacher even said I could join them on their "field trips" if I want to... Yay! He seems to be having fun and learning lots of valuable skills. They even provide Music Therapy once a week. I know he loves that!
Everyone has been extremely friendly. The students you encounter in the hall say "hello" and are very polite. The principal all the way down to the security guard have gone out of their way to welcome us and get to know the boy by name. I am very impressed overall.
So I guess my question is, why can't all schools and special needs programs be this great?! We have literally searched for the past 8 years and this is the first school that has even come close to meeting or exceeding my expectations.
The only thing I can complain about up to this point is that the para in his class barely speaks English. She is very difficult for me to understand, so it doesn't make sense that this is a person partially responsible for teaching my non-verbal child to communicate. I showed up during storytime one afternoon. At the end of the activity, the students are required to take their PECS schedule card, place it in the "All Done" slot and say "All done." The para was trying to get him to say the words but I could barely understand what she was saying myself. The other students at the table knew the routine and they tried to say it for him... I thought it was cute, but I was a little frustrated for him. I guess he'll get it down soon enough.
Anyway, I'm excited for the boy. I wish he could stay in the program through high school, but I guess it only lasts through 8th grade. There's a slight possibility he could stay for awhile longer if there aren't many kids in the program, but it sounds like they'll have an influx of 6th graders next fall and there's a limit of 6 kids in the class, so I doubt he'll be able to stay beyond 8th grade. We're going to do our best to enjoy the next 2 years though!
Monday, 02 April 2012
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We've been trying to use the new iPad as a reward for using the toilet for BM. That boy is stubborn. Went the entire Spring break without any luck and I felt so bad for not allowing him to play with it. It was sitting on top of the fridge just taunting him and he still pooped in his pants. So yesterday, hubby went to finish cleaning up the old apartment. The boy wanted to go with him to ride the elevator. I was worried daddy wouldn't be able to get anything accomplished with the boy there so I suggested he take to iPad to keep him occupied. I was having some dairy issues after combining a blizzard with my iron supplement, so I was more than happy to have a few hours to myself.
Daddy said the boy definately needs a case with wide edges because when he holds it, because both thumbs touch the screen which makes tapping icons difficult. But that he was very gentle with it, never dropped it, and was eager to show daddy his pictures and videos after he took them.
I'm still a bit apprehensive to send it to school with him. We'll play that one by ear...
Today he started at his new school. They were supposed to go swimming but with it being the boy's first day, they decided to change up the schedule a bit this week. They're going shopping and to the library instead. With his special diet, I can imagine eating out at restaurants and buying food at the store may be a bit of a challenge. As well as any cooking projects they have. It may take some time but the teacher seems willing to work with us. She even said I could accompany them on their weekly field trips when they go bowling, skating, etc. I'm excited!
I need to go pick him up from school in about half an hour. I'm anxious to hear how his day went. Hopefully this teacher will be more willing to communicate than most of the other ones we've encountered, especially since there's only 3 or 4 kids in his class right now. They are expecting more next fall, and the teacher will be out on maternity leave for the first couple of months. That worries me a bit, but she insists the kids will be in good hands.
I'm eternally optimistic. Let's just hope I'm not disappointed.
Our microwave crapped out the other night. Lights up but no heat. We called to see if it was still under warranty with GE. It's not. We called our home buyers warranty and were concerned that they may not cover it since it's no longer under manufacturer's warranty. But they called the builder and he agreed to replace and install a new one today. Just waiting for someone to knock on the door.
Anytime now....
Wednesday, 28 March 2012
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So I spent another day waiting for the Comcast guy to come out cuz we still weren't getting any HD channels and the regular channels were spotty at best. I hadn't heard anything from him by 12:30 and called to get an ETA. He said he was going to try to get another black box for us and should be out around 2:00. At 2:00 he showed up with another huge, ugly grey box. I nearly came unglued... He said they'd been having problems with some of the black boxes. I said "Are you sure it's not just a signal strength issue?" He asked if the channels were breaking up like that with the old box and I said "yes." He apologized for not checking that the day before and went to get his meter. Sure enough we had a bad cable wire/connector. He was able to repair it and we happily got to keep the smaller sleeker black box and HDMI cable.
The boy's new iPad 2 showed up yesterday too. I asked hubby to keep it hidden until we had to chance to figure it out and add some educational apps. Daddy doesn't listen or severely underestimated the boy's ability to recognize pictures or logos. It was in the shipping box on the kitchen counter, but the iPad logo was still visible along where the shipping box was open. The boy discovered it right away and the battle was on. We put it off long enough to finish dinner, clean up the kitchen, take out the trash and bring in the mail. Then daddy was forced to figure it out as quickly as possible with the boy sitting in his lap with his face and head completely obscuring the screen. Daddy found the free Doodle Dots app we'd become aware of through his use of iPad at school. There were actually several versions and we weren't sure which one he was familiar with, so I suggested daddy let him pick it out. He did so very quickly and literally whipped though the activity. He knew exactly how to navigate the screens and was swiping his finger like an old pro. Daddy download a few more free apps and the boy loved them all. This is an exceptional learning tool for him and I really wish we would have been able to get him an iPad years ago.
The boy sprang out of bed at the crack of dawn this morning, immediately requesting the iPad. I would let him have it but I want to get some sort of protective case for it first. I found one I like but we don't have the money this week and the base is on backorder 'til May. I know I'll have to give in eventually but for now I kind of want to make it a special reward... Maybe we can actually get him potty trained with this because it's incredibly difficult to find anything that motivates him this much. I guess that will be my objective this week, especially since he's home for Spring Break right now.
Monday, 26 March 2012
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I'm having a seriously crappy Monday. Cable box died yesterday so technician came out and gave us a new one. Thank God is was the newer smaller black one with the sleek HDMI cable we've been hunting for for the past 2 weeks, versus the gigantic, clunky, old grey one with huge outdated cable wires. Unfortunately, the technician left while the software was updating. I don't know if it was something I did or an error on the cable company's part, we got regular channels but no HD channels. Hubby called and complained. The technician apologized and said he would take care of it. A little while later the screen went black again and I assumed they had to reload or update software again. Here it's been another hour and a half and we still have no channels... We tried calling again and left a message but no one has responded. This all began at 11:30 AM and I've had TV for one full hour since then.
So frustrating!
I'm ready to cancel cable completely but it costs almost as much for internet alone as it does to bundle the two and you have to pay for the HD service to watch TV in full screen mode without cutting off part of the picture. Such a scam! Our only other alternative is Dish and I HATE those nasty satellites on the balcony.
I'm really going to be pissed if I have to sit home waiting for cable techs and staring at a blank screen for another day tomorrow. But on the upside, I got the house pretty clean and the boy has been pretty chill hanging out on his computer, playing with his Nintendo and his camera all day. We're expecting his new iPad to come in tomorrow. He's really going to be excited about that, but we may have to hide it from him for a couple days until we figure out how to download some apps and such. I'm sure daddy's looking forward to playing with it as well.
The boy starts at his new school after Spring Break. I'm excited for him but a little nervous too. Change is always a little difficult. I really hope he'll be happy there and learn some practical skills for getting around in this big world. It was tough saying goodbye to his old teacher. She was really sweet and seemed like she was getting a little choked up too. I doubt the boy really understands what's going on. It'll probably take a little while for him to quit asking about his classmates. He adapts to change fairly easily so I'm pretty sure this will all be a new adventure to him.
Thursday, 15 March 2012
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Closing went off without a hitch. Our realtor was a huge help keeping the boy entertained during the proceeedings. We signed an unbelievable amount of probably completely uneccessary paperwork. The seller and our banker were there comparing notes on how few articles they had to sign back when they bought their first homes... Like under 5 pages each back in the 60's or 70's. We signed close to 50 pages at least. I probably sold my soul to Satan for all I know. By the end of it, my signature was unrecognizable and I couldn't even write the date in the right order anymore.
But we finally got out of there about 2 hours later. Went to see the condo because I hadn't seen it since the day we signed the initial contract. The boy hadn't seen it at all. Hubby did all the walk-throughs and inspections with help from the realtor. Then we had dinner at a nearby BBQ joint to celebrate.
Mover's showed up on Saturday... Two skinny young black guys no bigger than my husband and one in a cast. They whined and complained the whole time they loaded the truck, and then they whined and complained even more once they realized we were moving into an upstairs unit. They trucked the dolly up and down the stairs as loudly as possible. So far I've only found one broken item but it was more likely due to poor wrapping than rough treatment. At any rate, my usually generous husband decided they did not deserve a tip. He was mortified and embarrassed that they were so loud and obnoxious and ended up apologizing to at least one of our new neighbors a few days later.
We're loving the new condo though. It's so quiet and energy efficient. I don't think the heater has come on more than once. Granted we've had temps in the 70's for most of this week. As a matter of fact, it got a little stuffy in here last night and we ended up opening a window for a short while. There's a field full of prairie dogs across the street and another field with llamas and longhorns across the intersection. You can see the mountains from the south and west side of the building. On the east side of the building are several other apartment communities and to the north are some shopping venues including a Super Target, Kohl's, Old Navy, grocery stores, a bowling alley, movie theatre and all sorts of restaurants.
We live very near the Broncos training facility, so it was interesting to watch the news crews out there when Peyton Manning was in town. Everyone I've spoken to is torn over the prospect of recruiting Manning versus getting rid of Tebow. I would say the men lean toward wanting Manning and the females lean more toward keeping Tebow... But that's just a generalization. Personally I can't figure out why we'd want to replace a young buck like Tebow who has so much potential with an old guy who's already had 4 neck surgeries and may not last another season or two before he's permanently disabled. But men would argue his performance record... Like I really give a flying leap about the whole issue. Unfortunately, it's all that's on the TV or radio right now and as far as I can tell, it's looking more like Manning will go with Tennessee.
So we got a new diagnosis for the boy. Apparently his autism may the result of a genetic predisposition called Chromosome 15q Duplication Syndrome. Meaning that it's highly probable that the thimerosal in his vaccinations or other environmental toxins activated the gene that led to the demyelination of DNA strands or neurons or something like that... I don't completely understand it, but it has something to do with extra chromosomal material, like you would find in a person who has Down's Syndrome, Angelman's or Prader-Willi... I need to do more research, but as far as I can tell, it really won't change the way we treat him biomedically or otherwise. It may not be of as much benefit to treat so aggressively since it's not a reversible condition, but we can still do things to try to improve his speech, motor skills and quality of life.
The master nutritionist who works in cahoots with the doctor acted like she gave us a death sentence when she gave us the news. She just kept apologizing profusely and I couldn't figure out what she was so upset about. In her defense, I remember being completely devastated when we were told our daughter has type 1 diabetes... Perhaps it would have been more upsetting had we received this diagnosis when he was a baby and didn't understand everything we do about autism now, but he's 13 and this doesn't change anything for us. I think there's a slight increase in risk of sudden unexplained death and I think that would be more likely if he were still prone to the seizures he used to have. But he hasn't had a seizure in over 5 years and I doubt seriously that this is a terminal condition.
Our daughter and the grandparents are coming for a visit over Spring Break next week. They're also bringing their foreign exchange student. Everyone is planning on staying here so we're trying to plan some activities and stock up on some groceries for everyone. I'm anxious for them to see the new place, although his folks never saw our last apartment.
I think that's about all the news for this week. One more week of transporting the boy to his old school. We have our transition meeting next week and then he will start in the new school in April after his Spring Break. It's a really cool sounding program with lots of community-based learning and volunteer opportunities as well as visits to the library and swimming every Friday. I think he will love it.
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An angel of truth and a dream of fiction, A woman is a bundle of contradiction, She's afraid of a wasp, will scream at a mouse, But will tackle a stranger alone in the house. Sour as vinegar, sweet as a rose, She'll kiss you one minute, then turn up her nose, She'll win you in rage, enchant you in silk, She'll be stronger than brandy, milder than milk, At times she'll be vengeful, merry and sad, She'll hate you like poison, and love you like mad.


