Monday, 23 January 2012
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This past week went fast, especially the weekend. I can't believe it's Monday already!
We had a bunch of labwork done on Friday. I didn't figure it would be that busy, but we got there about 5 minutes before they were officially open and there were probably already 6-8 people ahead of us. Unfortunately there was only one lady working reception and taking blood and people just kept coming. The lobby was standing room only, there were probably another 5-10 people milling about in the hall, calling their offices, letting people know they were gonna be late. It was 8:40 by the time she took her first patient back. The boy did fairly well, we ran home for a quick snack before I took him to school at 10.
He had to go back for the second half of a cortisol test at 4:00. I figured we might as well go as soon as he got off the bus cuz it may be another long wait. Fortunately, they had gotten some help and there were only a couple people ahead of us. They could've gotten us in right away but the test wasn't due 'til 4 so we still ended up waiting about 45 minutes. We had the boy's camera so we rode the elevator up and down and took a few videos.
Saturday we didn't do much of anything. Cleaned house, did some laundry... Hubby took the van back to the repair shop... On Wednesday, we had the front tires replaced, rotated them to the back. Apparently they didn't bother to balance the tires they moved to the front. It was a rough ride to Colorado Springs on Thursday. We saw the new doctor on Thursday and then rushed back for a birthday party at a theater in Highland's Ranch. We had the entire theatre to ourselves. I told the mother of the birthday girl we would be running a little late, so she said she would just have our tickets waiting for us at the box office. When we got there, there was another member of the party just arriving. The mom was waiting at the box office, we got our tickets and we all walked in together where the rest of the party was waiting. I guess they didn't see any point in starting the movie until everyone showed up. It was quite nice actually! We were able to move around and chat a little during the movie. All the kids had special needs and it was nice that we didn't have to worry about disturbing anyone. There wasn't a lot about the movie to hold the boy's interest but he did surprisingly well. Not too much moaning or rocking. He was just a little obsessed about a camera he had seen at Walmart the night before. He wanted to go back and "Open (the) purple camera!"
Sunday we attended the church we found in Highland's Ranch. Our second visit. I've never really been one to enjoy mega-churches. This one is absolutely huge. I'd say nearly as big as Rhema. Part of the building where Sunday school classes are held is also used for a private school. We sat in the balcony last week. I noticed a lot of the seats were really worn-looking. Some were broken and corded off. We sat near the wall so I didn't see the view out of the window below. This week we arrived much earlier to avoid traffic and get the boy situated in his classroom which is at the exact opposite end of the building, at least a football field away from the sanctuary. This time we sat on the lower level, on the opposite side of the sanctuary. The view out the window is spectacular, overlooking the foothills and snow-capped mountains. I mean, if you want to feel like you're really a part of God's creation, this is where you need to be.
The pastor preaching on the current series is obviously a historian. His sermons are incredibly factual, yet it's interesting how he ties together today's event's with characters, places and historical events from the bible, using Hebrew and Latin words for reference. What I took away from it was, "Be happy, everyone has a calling and should use the gifts they've been given to serve the Lord." Whether you're a CPA or a carpet-layer, you should take pride in what you do and do it as if you were trying to please God, not man... Don't view it as just a job or the means to getting paycheck. Oh, and I guess if your career or job doesn't make you happy, you should try and volunteer or find some sort of mission that does make you happy, as long as you're serving the Lord.
On one hand, I'm incredibly grateful to have found a church that provides care for the boy. There's no way he would sit quietly through a dry sermon after the music ministry has gone. On the other hand, for such a big church, it's not very moving... They have their schedule, we sing a couple of songs, no one gets very excited about it. At one point I wondered if I was the only one in the congregation who was singing. At first I couldn't even see anyone else's lips moving. But after awhile, I could see a few people swaying and clapping along.
I've been to a few churches where the "spirit" starts moving. People start jumping up and down and raising their hands and praising God and you begin to wonder if the music will ever end... In retrospect it has always made me a little uncomfortable and I began to wonder whether it was real or just part of an act or mob mentality. Generally when that would happen, hubby and I would just stand and wait it out... So far that hasn't happened here.
When the music is finished, the preacher or associate pastor opens with a prayer and begins his sermon. They end with an alter call and benediction and everyone leaves. Most churches I've been to, the organist or band plays, people sometimes sing as those who want to, walk up to the alter, kneel, pray and/or speak to someone at the alter. Here, they send you to a room and send everyone else on their way. Just so cut and dried. I'm not really sure what to make of it. I thought it was supposed to be a joyous occasion when someone decided to accept Jesus as their personal lord and savior. I guess perhaps there's less pressure or embarrassment when they don't put it on public display. I just don't understand the logic.
So, I'd like to get a little more involved, maybe find a small group I can get together with sometime during the week. They offer Celebrate Recovery here and I'm really interested in trying that. Just have to work out the logistics of whether or not the boy can go to the "Kid Zone" or whether I should leave him at home with dad. I feel like I could connect with people on a much deeper level in a group like that, where everyone discusses their failings as human beings and you don't have to put up or cut through so many facades. But until I become a little more familiar with the church and what is expected of me, I'm kinda terrified to commit to anything. So far, the only people we've had any sort of interaction with are the people who run the boy's sunday school class. Other than that, it's like any other mega church, just a huge faceless crowd and no one really takes the time to say "hello" or get to know you unless you're otherwise involved with that person somehow.
It's all a process. And for me and my equally socially akward husband, it's a somewhat difficult process. But at least with special needs childcare provided for us, maybe we can actually take the time to work through it.
Friday, 20 January 2012
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Took the boy for initial consultation with new DAN! doctor yesterday. Walked in the door and saw brochures for hyperbaric oxygen chamber treatments. Red flag number one... Got copies of insurance card and other relevant paperwork submitted to receptionist and then she asked us if we wanted to pay and extra $20 for the biometric scan. Red flag number 2. I've been thru this with a DAN! doctor in Jenks several years ago when the boy was quite small and we were just beginning our journey. I wasn't aware that he was a DAN! doctor at the time but here he was waving a magic wand over the boy's hand, prescribing these odd magical potions I'd never heard of and having us sit in a tube of compressed air that was supposed to work miracles on the boy's damaged brain. It was all mumbo-jumbo to me at the time, made no sense and I never saw any improvement. Once we were firmly in debt because insurance doesn't tend to pay for this type of witchcraft, we finally pulled out.
So red flag number 3. The intake process. We filled out approx 20 pages of forms and questionaires weeks before the appointment. The doctor had obviously already perused them, highlighted a few things and made some notes. The nurse asked us pretty much the same 150 questions we already answered on the form. Then the nutritionist came in and asked us the same questions but wanted more detailed information... We'd been there an hour already and still hadn't even met the doctor. I was getting incredibly frustrated and ready to bolt out the door when the doctor showed up. When Doctor K arrived, the entire energy of the room changed. He was obviously already familiar with our case and was very knowledgeable about the testing we'd already had done. He spoke clearly, made sense and seemed very impressed with the work our current doctor had been doing. Good eye contact, very good bedside manner. The boy took to him like white on rice and allowed the doctor to examine him without as much as a whimper. As a matter fact, the boy took most of the instruments away from the doctor and began performing his own examination. He knew exactly what every tool and probe was used for.
Dr. K and the nutritionist consulted on copies of lab results our doctor in KC had requisitioned right there in the room. They bantered back and forth on which further testing should be performed and which ones weren't neccessary based on our current treatment. They both semed to have a good working knowledge of the Krebs system and them methyllation process, all of which is incredibly important to the boy's treatment but to me is entirely overwhelming. It was a bit chaotic trying to answer everyone's questions at once, but my recall was pretty good and I think I was able to answer everything clearly and concisely.
This morning we're having some fasting bloodwork drawn. We'll give them a week to get those results and digest all the information they have. Then we will see where they want to go with the treatment plan and determine if we want to proceed with this doctor or remain with our doctor in KC. I'm hopeful that his guy can meet our needs. I love Dr. B in KC but that's one heck of a drive. Not to mention, the man is probably not much longer for this world, much less his practice. I think he just recently lost his wife and celebrated his 90th birthday.
Well I gotta throw on some clothes and run the boy to the lab. Gonna be another busy day!
Wednesday, 18 January 2012
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Wrote a nice long entry yesterday and lost it when my connection to the internet failed while submitting. I hate it when that happens. Just didn't have the energy to try and rewrite and couldn't find where it might have saved it anywhere.
So here's the gist... Busy week with doctors' appointments, phone consultations and trying to get previous doctors to fax or mail medical records in a timely manner. Touring Joshua School for Autism today even though I doubt there's any way we could afford it. Just wanna see what we're missing out on and/or see if there's any private pay discounts or scholarships we would qualify for. Actually pretty pleased with current school but always keeping options open. Have begun search for new residence... I like our current residence very much but there are a few unpleasant things about living here that make me want to weigh other options. Mostly noise level, proximity to slamming doors, gates, barking dogs and the constant lack of sleep resulting from said noises.
The boy received his first official birthday party invitation. Going to see "Beauty and the Beast" with his "girlfriend" from therapy. Gotta try and find a birthday present today and then rush back from appointment in Colorado Springs tomorrow to make it to the party in time. That reminds me, probably ought to send a note and let teacher know the boy probably won't be at school tomorrow. Or that I'll be picking him up early at least. Depends on how lazy I feel...
Anyway, the results from the latest labwork we had done on the boy was pretty good. I guess his blood sugars are getting low at night which may be contributing to the nighttime sleeplessness. Of course his fungi and yeast levels are still high so probably some discomfort there too. Need to do a better job with the antifungals I guess. Picking up supplement powder we ordered from the compounding pharmacy last week. Takes 'em forever to make it... Of course now some of his dosages have changed, so I may need to supplement the supplements... Just when I think I got it all figured out.
Time to get the boy ready for school now!
Tuesday, 03 January 2012
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Fiesta Bowl was a nailbiter last night but the Cowboys pulled it off for a win by the skin of their teeth. Sort of anticlimatic though when the ref threw a flag for roughing the kicker at the exact moment everyone began celebrating... Hubby's bowl picks are still good though, he remains firmly in third place. Ha ha.
Daughter asked what he gets for winning. I said nothing but bragging rights and agreed with her that was lame. The winning office used to get either a free lunch or at least a round of drinks, but I guess things are tough all over these days.
Tebow wasn't able to save the Broncos this week but got into the playoffs by default anyway since Oakland lost. I guess that's good enough. The fans around here are SERIOUS, like nothing I've ever seen, even with OU or OSU fans.
It was hard waking up and getting back into my routine this morning. I was supposed to take hubby to work because someone forgot to order annual passes for the lightrail on time. I forgot and hubby didn't bother to wake me up. He just rode the train anyway and said no one bothered to check his pass. He will need to buy about a weeks worth of passes though until the annual one comes in. Dangit!
So I got up with barely enough time to bathe and force-feed the boy. Had less than 10 minutes to get him and myself dressed, pack his lunch and then I couldn't find his backpack. Searched every nook and cranny in the house and finally found it stuffed under the chair where it's probably been since we got back from Oklahoma. Had just enough time to catch my breath and regain my composure before we headed out to the bus stop. Hopefully tomorrow will go a little more smoothly.
I'm looking forward to Sunday. Decided on a whim to purchase tickets to see Cirque du Soleil- Michael Jackson The Immortal Tour. Got the cheapest nosebleed seats we could find at the Pepsi Center. I'm so excited. I only hope it holds the boys attention. He loves lights and music so I'm fairly certain it will... The crowds and or sitting still may just be a little overwhelming for him. However, we went to see Sherlock Holmes at the theatre while we were in OK. He and dad had to go sit in an empty corner by themselves so as not to disturb other movie-goers... I heard him moan a couple of times but dad said he remained fairly engaged during the opera scene and most of the action scenes. That's probably the first theatre movie I've taken him to see since "Coraline" but that was a middle-of-the-day matinee in a fairly empty theater. They do have a couple of theaters that offer the sensory-friendly showings of movies around here, where the lights aren't completely turned down and kids are allowed to chatter and mill about. I haven't tried it yet but I should. I really wanted to take him to see the Muppet Movie a few weeks ago but we just didn't have the money.
Anyway, the snow has mostly melted off and it was almost comfortable at the bus stop this morning. Supposed to be fairly warm all week I think, at least in the 50's and 60's. I could use a few warmer days. Our gas bill was almost double this past month because I've been running the fireplace almost non-stop during the day. Probably not the most efficient way to heat the house... I get too warm in my bedroom at night, but then I don't bother to turn up the thermostat when I come out into the livingroom. I sit next to the fireplace and it's nice just to flip a switch and have a cozy fire literally at your fingertips. So now I'm trying not to turn on the fireplace unless I really need it.
That's about it for now... So quiet not having the hubby or the boy here today. Hubby had to use up a few vacation days, not that we had the money to go anywhere or do anything... And of course the boy has been on Winter break. I enjoy their company but it's sort of nice to have the place to myself again.
Friday, 30 December 2011
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Happy New Year to ME!
Woke up to a nice surprise in the bank this morning... I was hopeful, but since hubby's company had already fired one CAD guy a week before Christmas due to a lack of work, and hubby had endured multiple meetings with the boss encouraging everyone to finish up projects before the end of the year so they could get paid, I wasn't holding my breath on him getting a bonus this year. I think he got a bonus last year, but they weren't able to contribute to profit sharing. So again, I was thrilled to find the extra amount deposited this payday...
After taking the boy to OT, I came home and organized all the bills. We managed to pay off most of the doctor bills, paid annual maintenance fees on the timeshare, life insurance premiums and two small credit card balances! Even had enough left over to pay a little on our major credit card! I am beyond thrilled to be going into 2012 with a fairly clean slate.
We also paid the deposit to hold a place for the boy at Summer camp. This will be his first residential camp. Five whole days! We got a $25 discount for making deposit before the end of the year and will receive another $50 discount if we pay the balance in full by the end of March. The $800 camp fee will end up costing us $725 if we don't qualify for any sort of scholarships.
I'm a little anxious about strangers being responsible for him for that long but it sounds like they know what they're doing. I warned them about all his allergies, meds and eccentricities and they said they're used to dealing with all of that. They offer horseback riding, rafting, canoeing, alpine slide, outdoor concerts, campfires, barbeques, swimming, hiking, etc. Kinda wish I was going... Lots of volunteer opportunites though, so I may try and get my foot in the door with this group, even if for no other reason than to get a discount on the camp fees. I won't volunteer during his week though. Hubby and I really need some time to ourselves!
Anyway, the bonus took such a weight off my shoulders... Now if we can just avoid getting bogged down again.
Thursday, 29 December 2011
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Survived the holidays so far... Enjoyed our visit to Oklahoma the week before Christmas. Had 3 get-togethers to attend and made a mad dash to Kansas City for a long overdue appointment with the boy's doctor. He just had some blood drawn and did a quick exam. We will likely call for results in a couple more weeks.
Got some pretty nice gifts from everyone. Daughter got her daddy a nice, warm and much needed coat. His folks got him a hat and gloves that coordinate nicely. He got a gift card to JCP, so after Christmas we got him some thermal underwear and moisture wicking over-the-calf black dress socks. The thermals are black as well, so when he modeled for me, he looked like some sort of skinny, nerdy ninja. Ha!
I got a GPS unit (for Dummies) from the daughter. Wonder what she's trying to say...? Haven't quite figured out how to use it yet but I'm learning, slowly. She also got me some nice boots. The in-laws got me gift cards to Bed Bath and Beyond because I said I wanted a Ninja Blender. Ended up with about $85 worth of cards. Unfortunately there are about 4 different models of Ninja Blenders and I didn't have a clue which one would best meet my needs. Hubby and I went to check 'em out the other day. The display model had some sort of cardboard daquiri mix cut-out inside the bucket so I reached inside to see if it had multi-level blades like one of the others we were looking at. I guess the word "Ninja" should have given me a clue... I barely touched the top blade and completely sliced my middle right finger open. Freakin' razor sharp! I didn't have anything to stop the bleeding so I stuck my finger in my mouth. That only made it worse. I continued to try and shop and compare prices, watt levels, and other accoutrements and after leaving several small pools of blood on the shelves, decided to go with the least expensive one. I didn't want to carry it around the store while we were browsing so I figured we'd look around and come back for it. Of course I found an even better, more expensive one that I decided I want. I guess it's the newest model because it was on the end cap, not in the aisle with the rest of them. Of course it costs twice as much but it can do all kinds of neat stuff and has twice the wattage too. I'm gonna have me some GOOD margaritas when I get around to purchasing it this weekend. It's nice cuz it has the paddles to mix cookie and/or pizza dough too.
Anyway, we ended up finding some flannel pajamas pants that I liked for the boy, but we went to 3 different JC Penney's stores and none had his size. Apparently a size 10 or Medium is a very poular size because that was the case with just about every other article of clothing we liked too. We finally ended up in the shoe section and found some snow boots we liked, again, not in his size... We had the cashier call around and found them in his size at another mall. So we drove out to the Westminster Mall in Boulder. It wasn't too terribly far away. Tried on the shoes and had the boy walk. They looked ridiculous on him and they made him walk funny, so we tried on a couple other pairs of boots and didn't find anything we liked. Decided to check out the boys clothing section (just in case) and found the pajama pants we had been looking for in several different colors on sale for 60% off. Apparently this isn't a very popular mall. Several of the stores were shut down including Dillard's and there were signs posted outside toting "great prices without the mall traffic," "Yes,we are Still Open!" and stuff like that. Considering we had spent 45 minutes in traffic in the Park Meadows mall parking lot the day before, it sounded like a great selling point to me!
So we got two pair of these awesome pajama pants for the boy... Although it was somewhat difficult, it wasn't that we couldn't find other pajamas in his size. Most of the pajamas we found had a weird fleece or polyester/styrofoamy texture to them them that I considered very Ucky! If I don't like the texture, I know it would drive the boy insane. Hubby thinks I'm weird... He's probably right. But the flannels are soft, loose fitting and 100% cotton. I would've liked to have found some more snug fitting Spiderman thermal PJs but I could only find them up to a size 10 and he's already outgrown his old size 10 pjs. As a matter of fact we had to toss out a pair of size 8's that he'd still been wearing because the elbows and knees were completely worn through, they came up to his knees and the final straw was when the rear end had a complete blow out. Not attractive to say the least...
So we're winding down the year on therapy. He has 2 more visits of OT this week. I'm not really seeing the benefit. We got another new therapist this week who is entirely too perky and talks down to him in a saccharin sweet voice one might use when speaking to an infant. That drives me batty. We only get 25 visits per year paid for by insurance. I doubt we will continue.
We've been doing a Relationship Development Intervention course with him that he seems to enjoy. Again, I'm not really allowed to observe so to me it's more like an hour of very expensive, glorified babysitting. He's supposed to be learning to interact appropriately with his peers. They play games and do turn-taking activities and I'm sure it's loads of fun. But at $500 for an 8-week course, it's really putting a strain on our budget. Insurance won't pay for it, and we haven't found any other programs to assist us with the cost.
So, we are reassessing our priorities for the new year... We're close to getting some medical bills paid off, but then we have to meet our deductible again for the new year so that's a wash...
Quit seeing the quack physician's assistant but have found a new DAN doctor in Colorado Springs we have an appointment with in January. Really hoping that works out well, but not holding my breath.
I've withdrawn him from the second half of the R.D.I. session to save some money. However, that will likely be going into his savings account to pay for summer camp which is about $800 if we don't qualify for any sort of scholarship.
Have pretty much decided OT is a waste of time, but have tried a couple of music therapy treatments and he seems to respond well to that... If I can do a co-treat with a speech therapist, that might be worthwhile. Unfortunately, insurance doesn't pay for speech or music therapy either... Until we get our finances back in some sort of order, we will likely hold off on everything for a month or two.
No big plans for New Year's Eve. Probably stay home, get drunk and wallow in our own misery. We've had at least an inch of snow on the ground since November 30th, and up to about 10 inches in our area. But it's supposed to get up to 60 degrees today and I see some evidence of thawing. Apparently it's unusal to have this much snow so early in the season... At least that's encouraging, because I'm already looking forward to Spring!
Wednesday, 14 December 2011
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Happy Birthday to the most wonderful man in the world, my husband! We be broke as usual so we aren't doing much to celebrate today. We had dinner to celebrate both of our birthdays at Texas Roadhouse last week and he was very sweet to buy donuts for my birthday on Saturday. He put a candle in one, served it warm and sang "Happy Birthday" to me... In return, for his birthday today, I packed him a big container of cheesy potato soup for lunch and I will make some steaks and baked potatoes for dinner tonite.
As usual, most of our budget has gone towards buying Christmas gifts for the kids. Sucks having a December birthday sometimes. But I think we've done a little better on gifts for the kids this year than we've been able to do in recent years. Of course we celebrated birthdays BIG last year. Took the boy to DisneyWorld for his 12th in November and took daughter and her boyfriend to Las Vegas for her 21st in February... Nothing huge and spectacular like that this year, but I think they will be pleased.
I know what daughter got for hubby and I'm sure he will be thrilled! Grandma and Grandpa were very pleased with their Omaha Steaks giftpack, even though they received it a little early. I've gotten the majority of my shopping done. It'll be a mad dash this Friday (payday) to get any last minute items before we head to Tulsa on Saturday.
The secret location of the Company Christmas Party has finally been revealed. I don't know why it was such a big secret. My daughter and I figured it had to be either the Aquarium or the Zoo since we had already done the Tulsa Air and Space Museum. The office secretary insisted all the little kids be there so we knew it would have to be something family friendly, and there really isn't much else to choose from in the Tulsa area. Our assumption about the Jenks Aquarium proved correct. I'm sure most of the kids will enjoy themselves. However, my experience with the boy has been that he's only interested in the bubbles from the air filters and the noise is a little overwhelming for him. Maybe it won't be so bad if we have the whole place to ourselves... I'm fairly certain we'll have the same boring, dry fajitas she has catered every year... I wish she'd come up with something different.
But I'm not complaining. Free food is free food after all. And this year the boss paid to fly all of us back to Tulsa since we have family there. He normally only flies the employees from Colorado. Extra family members are on their own. Needless to say, I don't think I've ever met any of the Colorado employees' wives or children. It's all hush, hush of course, and two of the CO employees have decided not to come this year. Boss normally put the employees up in a hotel too, but he didn't do that for us, again since he assumed we'd be staying with family. We could I suppose, but hubby's folks only have a stiff fold out futon in the front office and there's really no privacy. Daughter gets an employee discount at the Holiday Inn so I had her book us a couple nights there, as well as a room for her and her boyfriend so they wouldn't have to drive back and forth to Stillwater for company party and then family Christmas get-together the next day. She booked one close to the mall. The boy will enjoy the elevators and the swimming pool and maybe we'll have time to get a little more shopping done while we're there.
The boy has a doctors appointment in KC on Monday. We'll borrow the in-laws car and drive out on Monday. Supposed to have a little get-together with friends in BA when we return Monday evening. Then we'll return the car and fly home on Tuesday morning.
Speaking of the boy. His behaviors are slowly returning to normal. Became concerned about some vision issues and falling asleep in class which is highly unusual for the boy. So we made an appointment with a neurosurgeon to get his shunt checked out. CT scan was negative for hydrocephalus, thank God. but the neurosurgeon we went to wasn't licensed for pediatric surgery anyhow. He suggested we make an appointment with a pediatric neurosurgeon at the Children's Hospital in the next town just to have someone to go to if we were to have problems later on. The doctor we met was very friendly. He poked around on the boy and asked a few questions. I gave him neurosurgery medical records for the boy since birth and then we decided we'd come back in for a check up in about a year, assuming we have no problems before then. He also referred me to a couple of good pediatric opthmalogists in the outpatient center and I made an appointment with one of those as well. He's due for an eye exam and at his last appointment the doctor suggested we get him a stronger prescription. Appointment isn't til February so I'm sure he'll really need to increase the rx at that time.
Still don't have a clue what's got him so out of sorts lately. I put him back on the probiotics and he seems to be doing well enough with those. Only thing I can suppose is either it had something to do with the "balancing the cortices" exercises the OT began with him during Thanksgiving break, or possibly a change in the atmosphere since we've had snow and it's been so much colder this past couple of weeks. I know he would go a little haywire everytime it would rain in Oklahoma... Such an odd child. God love him!
Thursday, 01 December 2011
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It's been a long week... We restarted the boy on his probiotics the day after Thanksgiving. He's been completely out of sorts since then. Noisy, moaning loudly, rocking all day and night long and not sleeping well. Therefore daddy and I haven't gotten any sleep in about a week either. We've been taking turns sleeping with him in his bed. It's the only thing that keeps him quiet. I'm sure the upstairs neighbors aren't very happy with us right now.
I was hoping he would "adapt" after a few days. He's always taken these probiotics, and although he's been off of them for about a month, he's never had a problem with them before. I thought maybe he would rid his system of some of the toxins after a big BM, but he only poops about once a week lately and (T.M.I. warning) they are huge!!! Unfortunately, he hasn't had a good BM in quite some time...
I didn't give his probiotic last night in hopes that his behavior would be better today. The school has complained all week. If they tell me he's been better today, we may have to rethink the probiotic situation.
On the bright side (so to speak), we reached a point where we couldn't afford to buy diapers for about 2 weeks. We had to take turns setting the alarm and getting him up to go pee around 2 or 3 AM so he wouldn't wet the bed. We've had pretty good success with that (although it's a pain in the arse) and he's been better about pooping in the potty too, even though it's usually after he's already had a bit of an accident in his pants. We've decided to not buy diapers anymore, except for maybe when we travel. We bought a waterproof mattress cover and we've been doing a lot of laundry lately. Obviously we aren't "there" quite yet, but we're getting closer. One of my biggest fears has been that he would still be in diapers when he reached puberty... He has reached that point now, so I think it's time we really buckle down and get this done.
Budget has still been really tight. Trying to catch up on some medical bills and slowly but surely streamlining the supplement process. It's gonna be another scarce Christmas. I've bought each of the kids (including daughter's boyfriend) one fairly nice gift each. The family drew names at Thanksgiving and we ended up with hubby's folks. I used part of the grocery budget to order them a gift pack from Omaha Steaks. We're having to have most of our gifts shipped to Oklahoma because I don't want the hassle of trying to check them as luggage on the plane. Grandma and Grandpa's gifts will arrive a little early and of course they will have to "open" them early because they will need to go in the freezer. I could have waited a little longer to order I suppose but I didn't want to run the risk of them being delayed due to the holiday rush at the post office... I don't think they'll mind too much.
So I'm a little dissappointed that we probably won't have a tree this year. We were going to pick one up at Lowe's but by the time we get the tree, lights and base, it'll probably cost as much as an artificial tree. I don't want another artificial tree and for now, I would rather get gifts for the kids or practical things for around the house. I'd kind of like to find a mantle to mount over the fireplace. I could decorate that and at least hang the stockings... Then again, we could really use a dining room table and a bedroom suite too. Knowing me, we probably won't get anything until after the new year. Hoping for a Christmas bonus and a decent tax refund. Fingers crossed!
Wednesday, 23 November 2011
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Wow, I can't believe it's been over a week since I last posted. Things have been pretty crazy around here. I spent the better part of last week hunting frantically for Badge City vintage looking emergency vehicles, mostly firetrucks, to put on top of the cupcakes at the boy's Fireman's birthday party. I must have hit every Walmart and Toy's R Us on this side of the city. I finally found 8 that I liked...
Friday morning I got up and made 18 GFCF cupcakes for the boy's class. Teacher said there were 12 students but I wanted to make sure there were enough for the teachers and paras too. And since I decided to make it a class activity, I also made homemade icing, divided it up and dyed each one a different color so they could choose what color icing and sprinkles they wanted to decorate with. It only made about 4 1/2 cups of icing and I didn't think that would be nearly enough for 12 cupcakes, much less 18... So I ran back to the market and grabbed another bag of icing mix. Came home and made four more 1/2 cups of icing.
Teacher had told me to bring the cupcakes to school at noon and they would decorate them later. So I showed up at noon... She thanked me and was basically dismissing me. I asked, "Can I not stay?" She said they were going to decorate after class so told me to come back at one. So apparently she wasn't expecting me to participate. Everyone was kind and complimentary when I returned. And the kids seemed to have a good time. But there were only 8 kids present and two of them couldn't have or didn't want a cupcake. So, out of the 18 cupcakes I dragged in, I went home with about 11 leftovers.
I wasn't thrilled with the way the chocolate cupcakes turned out, the primary colored baking cups became somewhat translucent and they weren't "pretty" with the chocolate inside, not to mention I'm not a big fan of chocolate anyway. So I went back to the market again and bought some GF Key Lime cake mix. They turned out MUCH better and were pretty tasty if I do say so myself. I made a dozen for the party on Saturday and decorated them with orange icing and orange cream flavored sprinkles which was a really nice flavor combo with the key lime cake. It was then I discovered the die-cast firetrucks were much too large and heavy to place on top of the cupcakes. I decided to place them in the goody bags instead.
The party was a success but it didn't go as smoothly as I'd hoped... We started about half an hour late because only one family showed up. I forgot my phone so I didn't know for sure if anyone else was coming or if they were just running late. Unfortunately, the people that did show up had an appointment and would have to leave almost immediately. So we went ahead and sang Happy Birthday, blew out the candles and had some cake. It was about that time that the rest of our guests arrived. I served a couple more cupcakes, some soda and chips, opened gifts, and then everyone was ready for the museum tour. Hubby took 'em all dowstairs to meet with our tour guide. She gave an abbreviated history of the museum and fire safety lecture because most of the kids had special needs and weren't really getting anything out of it besides frustrated. So she proceeded to dress them up as fire chiefs and let them go play on the firetruck.
Hubby was in charge of taking some pictures while I cleaned up the party area. We switched off and I took pix while he hauled everything out to the car. The kids had a blast. I knew the boy would absolutely "LOVE" being able to climb up in a "real" firetruck. He steered and used the walkie-talkie and pushed every lever and button he could find. He was in hog heaven! And he just looked so darn cute doing it in that costume. All the kids were adorable...
And I just loved seeing him use his imagination. I remember a day when I never thought he would be able to engage in any sort of imaginative play. We had a little play workshop that someone had given us when he was little. It just took up space. He never touched it and I never bought any sort of dress-up or make-believe toys. He still doesn't really engage in make-believe activities with other kids, but he shared the space nicely in the firetruck. He has a set of car keys that he likes to pretend to use when he's in the car or in the elevator. He holds them up to the keyhole and seems to think he's really doing something. I try and let him unlock the front door of our apartment to improve some fine motor skills and work on increasing the strength in his hands.
Anyway, we ended up with a few leftover cupcakes from that party as well. And not very many people took the cups I filled as goody bags. They drank their sodas from the can and even though I let them each choose a die-cast vehicle to take home, no one seemed really interested in the candy-filled cups. I think they were just too excited to hurry downstairs and play. I packed 'em back up a returned them to the party store. They were about a buck each. That along with some othe small party favors and paper cups came to about $11 back in my pocket!!! I always seem to go overboard on these things, and I always worry about not having enough in case someone forgot to RSVP, so I always end up with extras.
We ended up with about 3 extra die-cast cars. Daddy chose his favorite and we returned the rest to Walmart. The boy got 2 Tonka Firetrucks as gifts so we returned one of those as well. I just put everything on a gift card and we'll let him use it to pick something out for himself some other time. Came to about $17 total. Should be enough to find something he likes with all the holiday sales goin on...
I'm not a big fan of shopping on Black Friday, and of course all the good stuff is wiped off the shelves after that, so I've tried to be a little more proactive this year. I've ordered one of daughter's gifts online, got her boyfriend a gift and got the boy his one big gift "from Santa." He's really been showing some interest in mommy's camera lately so I got a Fisher-Price one with reversable viewfinder so he can take photos and video clips of himself as well. Daddy's gonna have lots of fun uploading that stuff for him on the computer!
I guess I need to have my brother mail the drumset he's offered as well. We were hoping to see him at Christmas but since we're flying, I don't think it would be very easy to check on our flight.
Anyway, I got my turkey-bird today. Free-range, gluten-free, no antibiotics or hormones... Yadda, yadda, yadda. Gonna cook it in a roasting bag tomorrow and make all my favorite trimmings. We're having my famous cheeseball dip, greenbean casserole, gravy and mashed potatoes. I may have to cheat and go buy some Hawaiian rolls. They're my favorite too and Thanksgiving just wouldn't be the same without 'em.
We'll miss seeing my family for Thanksgiving this year. Goin' to Tulsa in between Thanksgiving, December birthdays and Christmas so we'll just celebrate everything at once with Hubby's folks. Maybe we can get together with my family again at our usual Easter gathering. My uncle posted on FB this morning that he finally found a new job, so I imagine he'll be staying where he's been for the past few years. That's usually where we meet...
That's about all for now. Everybody have a Happy and Blessed Thanksgiving Day!
Monday, 14 November 2011
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Another long weekend with no food in the house. It's amazing what one can find to eat when the cupboard is literally bare. I'm so sick of lentils and brown rice I could puke. I haven't had caffeine in over a week. On the upside, I've lost about 5 pounds... As much as I hate to do it, I'd better put lentils and rice on my shopping list in case we encounter another mandatory fast. There is seriously nothing left to eat in this house!
Hubby gets paid on Wednesday. Hopefully we won't starve before then... My girlfriend was supposed to send me the last $50 she owes on the fridge I sold her. She said she would send it last week. That sure would have come in handy. I spoke to her this morning and she apologized... Said things were tight and that she would send it this week instead. Would have been nice to know. I was really kinda counting on that check. We had to cut into our grocery budget to afford the supplements last week so we've barely been scraping by this past 10 days.
I guess it's time to revisit the idea of me finding a part-time job. Most of the things I'm qualified for are 7-3 or 3-11 type shifts and even then I'd have to go renew my certification... Unfortunately I have no idea how we would manage daycare and getting the boy to school and/or afterschool care... I'd have to find something during the hours of 8 and 2:30 PM and that pretty much leaves retail and food service. I absolutely abhor retail and food service. I don't know what I'm going to do.
The boy has been taking a Relationship Development Intervention group therapy class once a week. Our original thought was, we'd just try it out. It sounded like something he'd really benefit from. Unfortunately it's not really something that insurance would likely pay for. It was $575 for an 8-week course. I don't know that he's made a huge amount of progress in 8 weeks but I do know he really looks forward to it each week. It ended last week and I told the instructor I didn't think we'd be able to continue with the holidays coming up. She apparently spoke to the director and the director wrote me offering a discount for the next 3 quarters and stating that there would be another boy attending the next quarter who would be a perfect match for our son. We gave it some thought and looked to see where we could adjust the budget and finally agreed to allow him to continue. I guess we need to see if there's anyway insurance will reimburse us. I know they don't pay for speech therapy, but the director suggested that if we file it under some sort of "social work" category, they might... But I'm not holding my breath.
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An angel of truth and a dream of fiction, A woman is a bundle of contradiction, She's afraid of a wasp, will scream at a mouse, But will tackle a stranger alone in the house. Sour as vinegar, sweet as a rose, She'll kiss you one minute, then turn up her nose, She'll win you in rage, enchant you in silk, She'll be stronger than brandy, milder than milk, At times she'll be vengeful, merry and sad, She'll hate you like poison, and love you like mad.


